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Association “Children with oncohematologic diseases”

Association of “Children with oncohematologic diseases” is legal, entity registered under law for Non-Profit of 21.10.2010 by the Sofia City Court. The association is non-partisan, voluntary , independent association of parents and children with hematologic diseases , relatives and associates.

1. Protect the rights of children suffering from hematologic diseases.
2. Acquainting the public with hematologic diseases in children.
3. Improving of social adaptation of children during the active and maintenance therapy in the subsequent period.
4. Supporting , unification , encouragement , informing parents and children with hematologic diseases.
5. Providing psychological support for children and their families overcome the emotional consequence of the diseases.
6. Support the professional development and training of researchers and physicians in areas related to diagnosis , treatment and rehabilitation of children with hematologic diseases..
7. Assistance for the implementation of modern methods , tools and equipment to treat children with hematologic diseases .
8. Encouraging , supporting and developing research on the disease in Bulgaria and abroad.
9. Networking with similar organisations in Bulgaria and abroad.
10. Making connections and permanent dialogue between the Association and governing bodies and institutions in Bulgaria related to the disease.(Ministry of Health , Ministry of Labour and Social Policy , National Health Insurance Find , the Agency for Medicines , the National Labour Expert Medical Commissions and etc.)
11. Assistance in providing funds for treatment abroad.
12. Comprehensive support to families of infected children in their care for them.

For emotional problems of children with oncohematologic diseases:
As the adults with oncohematologic diseases , so and children with this diagnoses may feel frightened and helpless , but they are too young to fully understand  the diseases and treatment effects. Children with leukemia , lymphoma , solid tumors and others may face problems such as absence from school , separation from friends and inability to participate in certain activities such as sports and other extracurricular activities , at least for a while. The sick children may experience anger tower training team because it will cause them pain , or be subjected  to treatment . Involvement of the child again as much as possible activities is one of the best ways to have it down and minimize obstacles to its development.
Siblings  of these children may also need special attention. They may fear that the disease will overtake them and feel guilty about the disease to his brother or sister , and get less time and attention from their parents , who are dedicated to the sick child.
Parents of children with hematologic disease are often confused , angry and frightened , but as future complications occur  and  the imposition of a specific discipline the child , or the time and financial burden of the disease , which  may cause disagreements in the family. It is important that parents of sick child not only to seek guidance from the treatment team and support for medical problems , associated with disease and the treatment , as for the child and for themselves.

Coming soon our new website , where you will find many shared information , advice and help! We hope to be helpful and rely on the help of all who share our problems or simply wish to help.